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What do patients want? Surgical informed-consent and patient-centered care - An augmented model of information disclosure

机译：患者想要什么？ 外科知情同意和患者以患者为中心的护理 - 一个增强的信息披露模型

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The ideal moral standard for surgical informed-consent calls upon surgeons to carry out a disclosure dialogue with patients so they have as full as possible an understanding of the procedure before they sign the informed-consent form. This study is the first to empirically explore patient preferences regarding disclosure dialogue. Twelve Israelis who underwent life-saving surgeries participated in a narrative study. Three themes emerged from the analysis: objectification of patients, anxiety provoking processes and information, and lack of information that was essential for patients. Findings contribute to existing debates among surgeons regarding the scope and importance of some disclosure components. Analysis led to our formulation of an augmented subjective model of information disclosure that participants prefer, which extends beyond the immediate present of the surgery to the period after discharge, and until return to routine. Surgeons should be aware of patient preferences in disclosure, and gaps between perceptions of surgeons, and preferences and needs of patients.
机译：外科知情人士同意的理想道德标准呼吁外科医生与患者进行披露对话，以便在签署知情同意书之前尽可能充实地了解该程序。本研究是第一个明确探索关于披露对话的患者偏好。十二是以色列人接受救生手术的人参加了一个叙事研究。从分析中出现的三个主题：患者的客观化，焦虑令人惊叹和信息，以及缺乏对患者至关重要的信息。调查结果有助于外科医生的现有辩论，了解一些披露组成部分的范围和重要性。分析导致我们对参与者更愿意的信息披露的增强主观模型，其延伸到出院后手术的直接目的，直至返回常规。外科医生应该了解在披露中的患者偏好，以及外科医生的看法之间的间隙，以及患者的偏好和需求之间的差距。

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