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首页> 外文期刊>Clinical rheumatology >Toward electronic health recording: evaluation of electronic patient reported outcome measures (e-PROMs) system for remote monitoring of early systemic lupus patients
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Toward electronic health recording: evaluation of electronic patient reported outcome measures (e-PROMs) system for remote monitoring of early systemic lupus patients

机译：对电子健康录音：对电子患者的评估报告了早期全身狼疮患者远程监测的结果措施（E-PROMS）系统

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The study aimed to assess the value of evaluation of electronic patient reported outcome measures (e-PROMs) in the assessment and management of SLE disease activity flares, its association with adherence to therapy as well as organ damage. A randomized, controlled crossover study was carried out over a 24-month duration. One hundred forty-seven SLE patients meeting the revised American College of Rheumatology (ACR) criteria were enrolled. Systemic Lupus Erythematosus Disease Activity Index (SLEDAI) was used to assess disease activity, whereas organ damage was scored using the Systemic Lupus International Collaborating Clinics (SLICC)/ACR Damage Index. In the first 12 months, the patients were assessed every 3 months. At 12 months, the patients were randomized into a cohort of 73 patients who continued their care in the same style and 74 patients who completed an online e-PROMs questionnaire on monthly basis for another 12-month period. The data captured were then retrospectively analyzed at the end of the 24-month study period. At the end of the first year of the study, the mean SLEDAI and SDI scores were 8.72 (6.1) and 1.9 (2.2). At the end of the second year, the mean SLEDAI and SDI scores in the e-PROMs cohort were 3.1 (2.6) and 1.2 (1.3), whereas in the control group, the scores were 7.63 (6.7) and 1.8 (2.3), respectively (p < 0.01). Adjusting for possible confounding variables, the number of flares, regardless of their severity, was associated with damage accrual (OR 2.03, 95% CI 1.34 to 2.83, p < 0.001). Adherence to therapy was significantly (p < 0.1) higher in the e-PROMs group. e-PROMs was equivalent to PROMs paper format and has a potential disease-modifying effect as it facilitated close monitoring of disease activity with an option of management escalation whenever indicated.
机译：该研究旨在评估电子患者的评估价值报告的结果措施（E-PROMS）在SLE疾病活动耀斑的评估和管理中，其与依赖于治疗以及器官损伤。在24个月的持续时间内进行随机的受控交叉研究。达成一百四十七名符合美国风湿病学院（ACR）标准的一百四十七名SLE患者。 Systemic Lupus红斑病疾病活动指数（Sledai）用于评估疾病活动，而使用Systemic Lups国际合作诊所（SLICC）/ ACR损伤指数评分器官损害。在前12个月内，每3个月评估患者。在12个月后，患者随机分为73名患者的队列，他们继续在同一风格和74名患者按照12个月内每月完成在线电子竞争问卷调查问卷。然后在24个月的研究期结束时回顾性地分析捕获的数据。在研究的第一年结束时，平均斯莱达和SDI评分为8.72（6.1）和1.9（2.2）。在第二年结束时，E-Proms Cohort中的平均SLEDAI和SDI评分为3.1（2.6）和1.2（1.3），而在对照组中，分数为7.63（6.7）和1.8（2.3），分别（P <0.01）。调整可能的混淆变量，不论其严重程度如何，耀斑的数量与损伤应计（或2.03,95％CI 1.34至2.83，P <0.001）相关。在E-Proms组中，对治疗的粘附性显着（p <0.1）。 E-PROMS相当于PROMS纸张格式，并且具有潜在的疾病改性效果，因为它促进了在指出的情况下选择管理升级的疾病活动的密切监测。

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