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首页> 外文期刊>Sociology of health & illness >Personal perspectives on patient and public involvement – stories about becoming and being an expert by experience
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Personal perspectives on patient and public involvement – stories about becoming and being an expert by experience

机译：关于患者和公众参与的个人观点 - 关于成为并成为经验的专家的故事

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Abstract Patient and public involvement activities bring ‘lay participants’ and their accounts of lived experiences to the centre of health service development and delivery. For individuals, these accounts can provide an important resource, offering a sense of control and an opportunity to re‐frame past events. Furthermore, as involvement activities and the use of personal accounts have become more prominent, it is timely to examine the involvement process from the perspective of the ‘lay participants’. Hence, the aim of this study is to explore how people become involved and how they construct the accounts of their lived experience. We analyse the stories of people with lived mental illness or caring experiences, who have become experts by experience ( n ?=?13). We argue that becoming an expert by experience can help to re‐contextualise past experiences and support the re‐discovery of skills and expertise, leading experts by experience to construct both professionalised and politicised identities. The process has the potential to enforce narratives that portray illness experiences as motivators for social action and change. Additionally, we claim that the stories experts by experience share with health services and the public are not ‘lay accounts’ or ad hoc tales, but accounts constructed to serve specific purposes.
机译：摘要患者和公众参与活动带来“奠定了参与者”及其对卫生服务发展和交付中心的生活经验的叙述。对于个人而言，这些账户可以提供一个重要的资源，提供控制感和重新框架过去事件的机会。此外，随着参与活动和个人账户的使用变得更加突出，即时从“奠定参与者”的角度来看，审查参与过程。因此，这项研究的目的是探讨人们如何参与其中以及如何构建其居住体验的账户。我们分析了患有精神疾病或关怀体验的人的故事，他们通过经验成为专家（n？=？13）。我们认为，通过经验成为专家可以帮助改变过去的经验，并通过经验支持技能和专业知识，以构建专业化和政治化身份的经验。该过程有可能强制执行将疾病经历作为社会行动和变革的动机的叙述。此外，我们声称，与卫生服务和公众的经验分享的故事专家不是“账户”或临时故事，但构建的账户是为了服务特定目的。

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