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Exploring Lived Experiences of Chronic Pain Through Photo-Elicitation and Social Networking

机译：探索通过光素和社交网络的慢性疼痛的生活经验

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Objective. To understand how patients' use of photo-elicitation and online social networks (Facebook) enhances their understanding of what it means to live with pain. Design. Qualitative substudy of the intervention arm of a randomized trial. Setting/Subjects. Primary care patients living with pain drawn from nine family practices with at least two pain visits in the last six months. Methods. The private Facebook group was co-facilitated by a moderator and a patient-investigator who lives with chronic pain. Patients were asked to share photos that elicit their lived experience with chronic pain, and facilitators guided participants in ongoing discussion about these photos, and thus the life with pain. Facebook discussions were analyzed via Dedoose (a qualitative analysis software) using thematic analysis. Results. Discussions of photos elicited three overarching themes regarding patients' lived experience with chronic pain: 1) patients' redefined pain identity; 2) pain interference with enjoyment of life and activities; and 3) patients' diminished ability to function. Conclusions. Photo-elicitation is an innovative way to shed light on patients' lived experience with chronic pain. Despite some technical challenges, Facebook support groups utilizing photo-elicitation can provide a readily available platform that can facilitate interchange of patient experiences and might help patients communicate with their providers.
机译：客观的。要了解患者使用光学素和在线社交网络（Facebook）如何增强他们对痛苦的意义的理解。设计。随机试验的干预臂的定性拼写。设置/主题。初级护理患者患有疼痛的疼痛，在过去六个月至少有两次疼痛访问中的九个家庭做法。方法。私人Facebook集团由主持人和患有慢性疼痛的病人调查员共同促进。要求患者分享患有慢性痛苦的生活经历的照片，并且协调人指导参与者在持续讨论这些照片，因此痛苦的生命。 Facebook讨论通过使用主题分析来分析Depoose（定性分析软件）进行分析。结果。对照片的讨论引发了三个总体主题，就患者患有慢性疼痛的患者：1）患者重新定义的痛苦身份; 2）痛苦干扰享受生活和活动; 3）患者减少的功能能力。结论。照片elicitation是一种创新的患者患者患者患者患者患者患者的创新方法。尽管有一些技术挑战，Facebook支持群体利用照片elicitation可以提供易于可用的平台，可以促进患者体验的交换，并且可能有助于患者与其提供者沟通。

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