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Community Perspectives: Developing and Implementing a Smartphone Intervention for Latina Breast Cancer Survivors in Chicago

机译:社区观点:制定和实施芝加哥拉丁乳腺癌幸存者的智能手机干预

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Compared with non-Latina White breast cancer survivors (BCS), Latina BCS have poorer health-related quality of life and greater psychosocial needs. However, Latinas are less engaged in clinical research owing to harriers including less access to health-related information, less awareness of clinical trials, and practical barriers (e.g., competing time demands). Latina BCS are in need of educational and health-related resources that are culturally informed, scalable, and accessible. In 2015, the Chicago Cancer Health Equity Collaborative (ChicagoCHEC), a National Cancer Institute research collaborative, and ALAS-WINGS, a community organization providing educational and supportive resources to Latina BCS, partnered to develop My Guide. My Guide is a smartphone application-based intervention for Latina BCS designed to improve health-related quality of life (HRQOL). This article summarizes the experiences of ChicagoCHEC and ALAS-WINGS throughout the community-engaged research (CEnR) partnership. Using existing relationships in community and academic settings via CEnR provides an ideal starting point for tailoring resources to Latina BCS and engaging Latina BCS in health-related research.
机译:与非拉丁白乳腺癌幸存者(BCS)相比,拉丁BCS与较差的健康状生活质量和更大的心理社会需求。然而,由于鹞子,拉丁美洲少参与临床研究,包括较低的临床研究,包括较少的健康信息,临床试验的意识和实际障碍(例如,竞争时间要求)。 Latina BCS需要教育和健康相关的资源,这些资源是在文化上知情,可扩展和可访问的。 2015年,芝加哥癌症健康股权合作(Chicagochec)是一个国家癌症研究所研究协作,以及为拉丁公然局提供教育和支持资源的社区组织,合作开发我的指南。我的指南是一个基于智能手机应用的干预措施,适用于Latina BCS,旨在提高与健康相关的生活质量(HRQOL)。本文总结了整个社区从事研究(CENR)伙伴关系的芝加哥和艾拉斯翅膀的经验。通过CENR使用社区和学术环境中的现有关系提供了一个理想的出发点,用于裁剪到拉丁BCS和吸附于与健康有关的研究中的拉丁公元前。

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