• 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>AJOB Primary Research >Balancing Indigenous Principles and Institutional Research Guidelines for Informed Consent: A Case Study from the Peruvian Amazon
【24h】

Balancing Indigenous Principles and Institutional Research Guidelines for Informed Consent: A Case Study from the Peruvian Amazon

机译：平衡知情同意的土著原则和机构研究指南：秘鲁亚马逊的案例研究

获取原文
获取原文并翻译 | 示例
       
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Background: Current literature emphasizes the need to implement informed consent according to indigenous principles and worldviews. However, few studies explicitly address how informed consent can be effectively and appropriately obtained in indigenous communities in accordance with research ethics guidelines. Methods: This article uses participatory rural appraisal methods to identify and characterize community preferences for informed consent in two indigenous communities in the Peruvian Amazon, using Canadian federal research regulations and McGill University's Research Ethics Board as a case study to examine where institutional ethics guidelines constrain or support culturally appropriate notions of informed consent. Results: The study emphasizes the importance of tailoring informed consent procedures to community circumstances. Although both communities in this case study are located in the Peruvian Amazon, there were important distinctions between them, such as gender dynamics and social structure, which profoundly affected informed consent procedures. It is also important to consider the balance of collectivism and individualism at a community level in order to determine the role of individual and community consent. Conclusion: Research ethics guidelines generally allow for this contextualized approach. However, regulations still have the potential to constrain indigenous informed consent due to content requirements for informed consent forms, limited flexibility for modifications in the field, and requirements for individual consent.
机译：背景：目前的文献强调必须根据土著原则和世界观执行知情同意。但是，很少有研究明确涉及如何根据研究伦理准则在土著社区中有效和适当地获得知情同意。方法：本文采用参与式农村评估方法，以加拿大联邦研究法规和麦吉尔大学研究伦理委员会为例，研究和探讨了制度性伦理约束或限制了秘鲁亚马逊地区两个土著社区中知情同意的社区偏好并进行了特征描述。支持文化上适当的知情同意的概念。结果：该研究强调了根据社区情况调整知情同意程序的重要性。尽管本案例研究中的两个社区都位于秘鲁亚马逊河，但它们之间还是存在重要区别，例如性别动态和社会结构，这深刻影响了知情同意程序。为了确定个人和社区同意的作用，在社区一级考虑集体主义和个人主义之间的平衡也很重要。结论：研究伦理准则通常允许这种情境化方法。但是，由于知情同意书的内容要求，实地修改的灵活性有限以及个人同意的要求，法规仍可能限制本地知情同意。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号