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首页> 外文期刊>Journal of pediatric nursing >Resilience in Families of Children With Autism and Sleep Problems Using Mixed Methods
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Resilience in Families of Children With Autism and Sleep Problems Using Mixed Methods

机译:使用混合方法对自闭症和睡眠问题的儿童家庭的恢复性

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Abstract Purpose About 80% of children with autism spectrum disorder (ASD) have sleep problems that may disrupt optimal family functioning. We explored the impact of sleep problems on families' resilience. Design and Methods An explanatory sequential mixed methods design was used to discern whether resilience differed between families whose children with ASD have or do not have sleep problems, to seek predictors for family hardiness/resilience, and to determine whether narrative findings support, expand, or conflict quantitative findings. Results Seventy complete surveys were returned from parents of children with ASD to compare sleep and family functioning. Fifty-seven children had sleep problems and six interviews regarding eight of these children were conducted. Parents of children with ASD and sleep problems had lower levels of resilience than those who slept well. Predictors of hardiness were social support, coping-coherence (stress management), and lower strain scores. Qualitative content analysis revealed a journey analogy with themes: finding the trailhead, dual pathways, crossing paths and choosing travel companions, forging new paths, resting along the way, and seeing the vistas. Conclusions Qualitative findings supported quantitative findings regarding the impact of sleep problems but also expanded them by illustrating how families' resilience and children's socialization improved over time. Social support predicted family hardiness. Parents revealed that sleep issues contributed to family strains and described their progression to resilience and embracing their child. Practice Implications Findings support the need for community and provider advocacy and implicates a need for development of sleep interventions on behalf of families and children with ASD. Highlights ? Building resilience is difficult in families of children with ASD and insomnia. ? Social (community) support predicts better resilience. ? Journey toward resilience includes diagnosis, travel companions, sleep improvements. ? Sequential mixed methods corroborated and expanded findings.
机译:摘要目的,约有80%的自闭症谱系障碍(ASD)具有休眠问题,可能会破坏最佳的家庭功能。我们探讨了睡眠问题对家庭恢复力的影响。设计和方法解释性顺序混合方法设计旨在辨别出亚本子儿童是否具有或没有睡眠问题的家庭之间的弹性,以寻求家庭古金/弹性的预测因子,并确定叙述结果是否支持,扩大或冲突定量发现。结果70七十个完整的调查从ASD的儿童父母返回,以比较睡眠和家庭功能。五十七名儿童有睡眠问题,对其中八个儿童进行了六次面试。有ASD和睡眠问题的儿童的父母具有较低的恢复程度,而不是那些睡得好的人。耐心预测因素是社会支持,应对 - 一致性(压力管理)和降低应变分数。定性内容分析揭示了一个与主题的旅程类比:寻找流行头,双路,穿越路径和选择旅行伴侣,锻造新的路径,沿途休息,看看Vistas。结论定性结果支持有关睡眠问题的影响的定量结果,但也通过说明家庭的恢复和儿童的社会化随着时间的推移如何改善而扩大它们。社会支持预测家庭居高素。父母透露,睡眠问题促成了家庭菌群,并描述了他们的进展,以适应他们的孩子。实践影响调查结果支持社区和提供商宣传的需求,并介绍了代表家庭和儿童发展睡眠干预的必要性。强调 ?在亚斯迪和失眠的儿童家庭中,建筑恢复力很难。还社会(社区)支持预测更好的弹性。还恢复力的旅程包括诊断,旅行伴侣,睡眠改进。还序贯混合方法证实和扩展结果。

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