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首页> 外文期刊>Journal of psychiatric and mental health nursing >Not sick enough: Experiences of carers of people with mental illness negotiating care for their relatives with mental health services
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Not sick enough: Experiences of carers of people with mental illness negotiating care for their relatives with mental health services

机译：不够生病：精神疾病的人的护理人员的经验谈判他们与心理健康服务的亲属

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Accessible summary What is known on the subject? Existing literature provides insight into the general experience of carers of people with a mental illness. Previous studies have found that carers experience a range of emotions when looking after their relatives with a mental illness. However, experiences of carers as they engage with the healthcare system is largely absent from the literature. What this paper adds to existing knowledge? This paper identified the experiences of carers when their relatives are experiencing a crisis or acutely unwell. Carers found themselves in the middle between mental health services and their relatives. Strategies employed by carers to ensure their relatives receive adequate care were identified from this study. This paper identified how carers needed to become more assertive in order to receive adequate care for their relatives, and this finding has implications for any future carer education. What are the implications for practice? The participants identified the need to work more collaboratively with carers of people with a mental illness as they seek treatment for their relatives in order to achieve better health outcomes for the patients. Improved health service engagement of carers was seen by participants to assist them to better care for their relative. The study also found that there needs to be a clearer definition as to what constitutes mental health crisis and how carers are able to intervene during this period. Services could provide clear information concerning crisis services and in particular triage. Abstract Aim The literature reporting experiences of relatives of people with mental illness regarding their interactions with mental health services identifies many commonalities. However, the actual experience of carers engaging the services and understanding healthcare systems remains a gap in the literature. The aim of this study was to explore the experiences of carers (of people with a severe mental illness) in a major area mental health service in Victoria Australia as they fulfil their caring role while negotiating support for their relative. A carer is defined as a family member or significant other who is the primary individual who provides informal care for a person with severe mental illness and may or may not be in receipt of income supplement for such a role. Specifically this study has a focus on the experience of the carer when negotiating care needs or admission with a mental health service. Method A qualitative descriptive approach was used with five focus groups as a means of data collection. Ethical approval for the study was obtained from both the hospital and universities ethics committees. Results Key themes identified using thematic analysis are presented in the words of the carers and include: “Juggling” between services; We became assertive and If only they would listen. Often carers were advocating for their relative and needing to negotiate between services (police and crisis assessment teams) to gain any form of assessment or intervention. Carers often spent a great deal of time on the phone to services only to be told that their relative was “not sick enough” to access care or that no response would occur without another service also being involved. Discussion Our research highlights the importance of working collaboratively with informal carers and acknowledging their valuable contribution to the care of their relatives with a severe mental illness. It is very important that adequate support is given to carers especially during the period when their relatives are experiencing a crisis. An understanding of their experiences ensures a more family focused approach towards care. The study findings should enable the healthcare team to focus attention on the issues which are most pertinent to carers. Nurses are advocates not only for the patient but also for their families. Relevance statement Carers
机译：Accessible摘要在主题上已知的内容是什么？现有文献为精神疾病的人们提供了洞察力的洞察力。以前的研究发现，在用精神疾病的亲戚之后，护理人员在照顾他们的亲属时会体验一系列情绪。然而，作为他们与医疗保健系统互动的照顾者的经验主要来自文献。本文增加了现有知识的内容？本文确定了当他们的亲属在经历危机或急性不适时的护理人员的经验。照顾者在心理健康服务和亲戚之间发现自己。从本研究中确定了护理人员雇用的战略，以确保其亲属获得充分的护理。本文确定了如何让您的护士变得更加自信，以便为其亲属提供充分的照顾，并且这一发现对未来的护理教育有影响。对练习有何影响？与会者确定需要与精神疾病的人的护理人员更加合作，因为他们寻求对亲属的治疗以实现患者的更好的健康结果。参与者看到了提高护理人员的健康服务参与，以帮助他们更好地照顾他们的亲戚。该研究还发现，对于构成心理健康危机以及护士在此期间能够进行干预的情况，需要更清晰。服务可以提供有关危机服务和特定分类的清晰信息。摘要旨在提出患有精神疾病与心理健康服务互动的人亲属的文献报告经验确定了许多共性。然而，参与服务和了解医疗保健系统的护理人员的实际经验仍然是文献中的差距。本研究的目的是在维多利亚澳大利亚的主要区域心理健康服务中探讨护理人员（具有严重精神疾病的人），因为它们在谈判对其亲属的支持时履行其关怀角色。护理人员被定义为家庭成员或重要人物，他们是为具有严重精神疾病的人提供非正式护理的主要个人，也可能或可能不会收到这种作用的收入补充。具体而言，这项研究重点是当谈判护理需求或充满心理健康服务时的护理人员的经验。方法使用五个焦点组使用定性描述性方法作为数据收集的手段。该研究的道德批准是从医院和大学伦理委员会获得的。结果使用主题分析所识别的关键主题以护理人员的话呈现，包括：服务之间的“杂耍”;我们变得自信，如果只是他们会倾听。经常照顾者倡导他们的亲戚和需要在服务（警察和危机评估小组）之间进行谈判，以获得任何形式的评估或干预。护理人员经常花费大量的时间，只能被告知他们的相对是“不带病”来获取护理，或者没有其他服务也不会发生任何反应。讨论我们的研究强调了与非正式护理人员合作的重要性，并承认他们对其亲属的宝贵贡献，具有严重的精神疾病。非常重要的是，在他们的亲属正在经历危机时，给予护理人员非常重要。理解他们的经历确保了更多的家庭专注于照顾的方法。研究结果应使医疗保健团队能够将注意力集中在与护理人员最相关的问题上。护士不仅适用于患者，还适合家庭。相关声明护理人员

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