...
  • 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Journal of the European Academy of Dermatology and Venereology: JEADV >Quality of life measurement in hidradenitis suppurativa: position statement of the European Academy of Dermatology and Venereology task forces on Quality of Life and Patient‐Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa
【24h】

Quality of life measurement in hidradenitis suppurativa: position statement of the European Academy of Dermatology and Venereology task forces on Quality of Life and Patient‐Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa

机译：Hidradenitis的生活质量测量Suppurativa：欧洲皮肤科学院的立场声明和有患者以患者为导向的成果和痤疮，蔷薇痤疮和Hidradenita suppurativa

获取原文
获取原文并翻译 | 示例
   

获取外文期刊封面封底 >>

       
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Abstract This paper is organized jointly by the European Academy of Dermatology and Venereology ( EADV ) Task Force ( TF ) on Quality of Life (QoL) and Patient‐Oriented Outcomes and the EADV TF on acne, rosacea and hidradenitis suppurativa ( ARHS ). The purpose of this paper was to present current knowledge about QoL assessment in HS , including data on HS ‐specific health‐related ( HR ) QoL instruments and HRQ oL changes in clinical trials, and to make practical recommendations concerning the assessment of QoL in people with HS . HS results in significant quimp that is higher than in most other chronic skin diseases. HS impact in published studies was assessed predominantly (84% of studies) by the Dermatology Life Quality Index ( DLQI ). There is a lack of high‐quality clinical trials in HS patients where HRQ oL instruments have been used as outcome measures. One double‐blind randomized placebo‐controlled trial on infliximab with low number of participants reported significantly better HRQ oL improvement in the treatment group than in the placebo group. Well‐designed clinical studies in HS patients to compare different treatment methods, including surgical methods and assessing long‐term effects, are needed. Because of lack of sufficient validation, the Task Forces are not at present able to recommend existing HS ‐specific HRQ oL instruments for use in clinical studies. The EADV TF s recommend the dermatology‐specific DLQI questionnaire for use in HS patients. The EADV TF s encourage the further development, validation and use of other HS ‐specific, dermatology‐specific and generic instruments but such use should be based on the principles presented in the previous publications of the EADV TF on QoL and Patient‐Oriented Outcomes.
机译：摘要本文是由欧洲皮肤科和经历（EADV）工作队（TF）共同组织的，以质量（QOL）和患者导向的结果以及痤疮，红斑酸和HIDradenitis Suppurativa（ARHS）的eADV TF组织。本文的目的是目前关于HS QoL评估的目前的知识，包括HS-特异性健康相关（HR）QOL仪器和HRQ OL在临床试验中的变化，并对人们评估进行评估的实际建议用hs。 HS导致高于大多数其他慢性皮肤病的显着斑点。通过皮肤科生活质量指数（DLQI）主要评估发表研究的HS对发表的研究的影响。 HS患者缺乏高质量的临床试验，其中HRQ OL仪器已被用作结果措施。含有少量参与者的英夫利昔单抗的一个双盲随机安慰剂对照试验报告了治疗组的HRQ OL在安慰剂组中具有显着更好的HRQ OL。需要精心设计的HS患者的临床研究，以比较不同的治疗方法，包括手术方法和评估长期效应。由于缺乏足够的验证，目前还不能推荐现有的HS-特异性HRQ OL仪器用于临床研究。 EADV TF S推荐用于HS患者的特定皮肤病学特定的DLQI问卷。 EADV TF S鼓励其他HS-特异性，特定皮肤科和通用仪器的进一步开发，验证和使用，但这种使用应基于EADV TF在QOL和患者导向的结果上的先前出版物中提出的原理。

著录项

  • 来源
  • 作者

    Chernyshov P.V.; Zouboulis C.C.; Tomas‐Aragones L.; Jemec G.B.; Svensson A.; Manolache L.; Tzellos T.; Sampogna F.; Pustisek N.; Zee H.H.; Marron S.E.; Spillekom‐van Koulil S.; Bewley A.; Linder D.; Abeni D.; Szepietowski J.C.; Augustin M.; Finlay A.Y.;

  • 作者单位

    Department of Dermatology and VenereologyNational Medical UniversityKiev Ukraine;

    Departments of Dermatology Venereology Allergology and ImmunologyBrandenburg Medical School;

    Department of PsychologyUniversity of ZaragozaZaragoza Spain;

    Department of DermatologyZealand University HospitalRoskilde Denmark;

    Department of Dermatology and VenereologySkane University HospitalMalm? Sweden;

    DermatologyDali MedicalBucharest Romania;

    Department of DermatologyUniversity Hospital of North NorwayTroms Norway;

    Clinical Epidemiology UnitIDI‐IRCCSRome Italy;

    Children's Hospital ZagrebUniversity of ZagrebZagreb Croatia;

    Department of DermatologyErasmus University Medical CenterRotterdam The Netherlands;

    Department of DermatologyAragon Psychodermatology Research Group (GAI+PD)Zaragoza Spain;

    Department of Medical PsychologyRadboud University Medical CenterNijmegen The Netherlands;

    Whipps Cross University HospitalLondon UK;

    Unit of DermatologyBen Gurion University of the NegevBeer‐Sheva Israel;

    Clinical Epidemiology UnitIDI‐IRCCSRome Italy;

    Department of DermatologyWroclaw Medical UniversityWroclaw Poland;

    Institute for Health Services Research in Dermatology and Nursing (IVDP)University Medical Center;

    Department of Dermatology and Wound HealingCardiff UniversityCardiff UK;

  • 收录信息
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类 皮肤病学与性病学;
  • 关键词

相似文献

  • 外文文献
  • 中文文献
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号