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首页> 外文期刊>British journal of ophthalmology >Perceived quality of health care in macular disease: a survey of members of the Macular Disease Society.
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Perceived quality of health care in macular disease: a survey of members of the Macular Disease Society.

机译：黄斑疾病卫生保健的感知质量：黄斑病学会成员的一项调查。

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AIM: To investigate the experiences of people with macular disease within the British healthcare system. METHOD: The Macular Disease Society Questionnaire, a self completion questionnaire designed to survey the experiences of people with macular disease, was sent to 2000 randomly selected members of the Macular Disease Society. The questionnaire incorporated items about people's experiences with health professionals and the information and support provided by them at the time of diagnosis and thereafter. RESULTS: Over 50% thought their consultant eye specialist was not interested in them as a person and 40% were dissatisfied with their diagnostic consultation. 185 people thought their general practitioner (GP) was well informed about macular disease but twice as many people thought their GP was not well informed. About an equal number of people thought their GP was supportive as those who thought their GP was not supportive. A total of 1247 people were told "nothing can be done to help with your macular disease." A number of negative emotional reactions were experienced by those people as a result, with 61% of them reporting feeling anxious or depressed. Of 282 people experiencing visual hallucinations after diagnosis with macular disease, only 20.9% were offered explanations for them. CONCLUSIONS: Many people with macular disease have unsatisfactory experiences of the healthcare system. Many of the reasons for dissatisfaction could be resolved by healthcare professionals if they were better informed about macular disease and had a better understanding of and empathy with patients' experiences.
机译：目的：调查英国医疗体系中黄斑疾病患者的经历。方法：将黄斑病学会问卷调查表（旨在调查黄斑病患者的经历的自我完成调查表）发送给2000个随机选择的黄斑病学会成员。该调查表包含了有关人们在医疗专业人员中的经历以及他们在诊断时及之后提供的信息和支持的项目。结果：超过50％的人认为他们的顾问眼科专家对他们本身并不感兴趣，而40％的人对他们的诊断咨询不满意。 185个人认为他们的全科医生（GP）对黄斑疾病有充分的了解，但有两倍的人认为他们的GP对黄斑疾病没有充分的了解。大约有相同的人认为自己的家庭医生是支持者，而那些认为自己的家庭医生不支持者。共有1247人被告知“无助于治疗您的黄斑疾病”。结果，这些人经历了许多负面情绪反应，其中61％的人报告感到焦虑或沮丧。在诊断出患有黄斑疾病后出现幻觉的282位患者中，只有20.9％为其提供了解释。结论：许多黄斑疾病患者的医疗保健系统体验不尽人意。如果医疗保健专业人员可以更好地了解黄斑疾病，并且对患者的经历有更好的理解和同情，则可以通过医疗专业人员解决许多不满意的原因。

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