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首页> 外文期刊>Issues in comprehensive pediatric nursing. >Parental caregiving of children with cancer and family impact, economic burden: Nursing perspectives
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Parental caregiving of children with cancer and family impact, economic burden: Nursing perspectives

机译：患有癌症和家庭影响的儿童的父母照料，经济负担：护理观点

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Pediatric cancer diagnoses affect the entire family: parents, well siblings, the ill child, and others. The objective of this study was to review nursing studies on parental caregiving of children with cancer, family impact, and costs. The study used inclusion/exclusion criteria and family systems theory, self/dependent-care, and symptom management (monitoring, alleviation) concepts. Regarding "levels of evidence," 3 studies were Level II; 7 were Level IV; 7 were Level VI; 1 review was Level V and the second was Level I. Of 19 studies: 11 were qualitative; 4, quantitative; 2 were mixed methods. Content analysis themes were: Parental caregiving and family impact, economic burden. Conclusions were that (a) qualitative studies are predominant; findings supported quantitative findings; (b) quantitative nursing studies are less common: found one longitudinal, randomized controlled trial (RCT) focused on outcomes of an intervention for well siblings and parents, implemented by Clinical Nurse Specialists, CNSs; (c) few quantitative studies with large samples were found, especially ones with theoretical models of the family system and measures of illness impact on families; and (d) "mixed methods" longitudinal nursing research is illustrated. There is a need for "evidence-based" practice (EBP) nursing studies of interventions focused on parent education/support/assistance; respite care, and increasing family/well sibling knowledge/other information on the child's illness.
机译：小儿癌症的诊断影响到整个家庭：父母，同胞兄弟姐妹，生病的孩子等。这项研究的目的是审查有关癌症儿童的父母监护，家庭影响和费用的护理研究。该研究使用了纳入/排除标准和家庭系统理论，自我/依存护理和症状管理（监测，缓解）概念。关于“证据级别”，有3项研究属于II级; IV级为7; VI级为7级; 19条研究中，有1条评论为V级，第二条评论为I级。11个研究是定性的; 4，定量; 2种混合方法。内容分析主题为：父母的照料和家庭影响，经济负担。结论是：（a）定性研究占主导地位;发现支持定量发现; （b）定量护理研究较少见：发现了一项纵向，随机对照试验（RCT），其重点是由中枢神经系统临床护士专家实施的针对同胞和父母的干预结果。 （c）很少有大样本的定量研究，特别是那些具有家庭制度理论模型和疾病对家庭影响的措施的定量研究; （d）说明了“混合方法”的纵向护理研究。需要针对父母的教育/支持/援助的干预措施的“循证实践”护理研究;临时照料，并增加有关孩子疾病的家庭/兄弟姐妹知识/其他信息。

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