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Pediatric clinical research networks: current status, common challenges, and potential solutions.

机译:儿科临床研究网络:现状,共同挑战和潜在解决方案。

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OBJECTIVES: The goals were (1) to describe and to characterize pediatric clinical research networks (PCRNs) in the United States and Canada, (2) to identify PCRN strengths and weaknesses, (3) to evaluate the potential for collaboration among PCRNs, and (4) to assess untapped potential interest in PCRN participation. METHODS: Data collection included (1) initial identification of PCRNs through an Internet search and word of mouth, (2) follow-up surveys of PCRN leaders, (3) telephone interviews with 21 PCRN leaders, and (4) a survey of 43 American Academy of Pediatrics specialty leaders regarding untapped interest in network research. RESULTS: Seventy exclusively pediatric networks were identified. Of those, specialty care networks constituted the largest proportion (50%), followed by primary care (28.6%) and disease-specific (21.4%) networks. A network profile survey (response rate: 74.3%) revealed that approximately 90% held infrastructure funding. Nearly 75% of respondents viewed cross-network collaborations positively. In-depth telephone interviews corroborated the survey data, with cross-network collaboration mentioned consistently as a theme. American Academy of Pediatrics specialty leaders indicated that up to 30% of current nonparticipants might be interested in research involvement. CONCLUSIONS: Pediatric networks exist across the care continuum. Significant numbers of uninvolved practitioners may be interested in joining PCRNs. A strong majority of network leaders cited potential benefits from network collaboration.
机译:目标:目标是(1)描述和表征美国和加拿大的儿科临床研究网络(PCRN),(2)识别PCRN的优缺点,(3)评估PCRN之间合作的潜力,以及(4)评估尚未参与PCRN的潜在兴趣。方法:数据收集包括(1)通过互联网搜索和口口相传初步鉴定PCRN,(2)对PCRN领导人的后续调查,(3)对21位PCRN领导人的电话采访,以及(4)对43人的调查美国儿科学会专业领导者对网络研究的兴趣尚未开发。结果:确定了七十个专门的儿科网络。在这些网络中,专科医疗网络所占比例最大(50%),其次是初级医疗(28.6%)和针对特定疾病的网络(21.4%)。网络概况调查(答复率为74.3%)显示,大约90%的人持有基础设施资金。近75%的受访者对跨网络合作持积极态度。深入的电话采访证实了调查数据,始终以跨网络协作为主题。美国儿科学会专业领导指出,目前多达30%的未参加者可能对研究参与感兴趣。结论:儿科网络遍布整个护理连续体。大量不参与的从业者可能对加入PCRN感兴趣。绝大多数的网络领导者都提到了网络协作的潜在好处。

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