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首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >Physical and functional impact of chronic fatigue syndrome/myalgic encephalomyelitis in childhood.
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Physical and functional impact of chronic fatigue syndrome/myalgic encephalomyelitis in childhood.

机译：儿童慢性疲劳综合症/肌性脑脊髓炎的身体和功能影响。

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OBJECTIVE: The aim of this study was to compare self-reported and parent-reported quality of life for a group of pediatric patients with chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) and age- and gender-matched healthy control children, to determine the extent of functional and physical impairment. METHODS: The Child Health Questionnaire was completed by 25 children with CFS/ME, who were recruited throughout the United Kingdom, and by 23 age-, gender-, and Tanner scale-matched control children. In addition, patients were asked questions about the background to their illness (ie, precipitating factors), the status of their illness, and school attendance. RESULTS: The median illness duration for patients was 3 years. Sixty-eight percent of the children said that their illness developed quickly, and the illness had an infectious onset for 88%. Only 1 child (4%) attended school full-time, whereas 12 (48%) attended school part-time and 8 (32%) received home tuition only. Children with CFS/ME scored significantly lower for 10 of 14 Child Health Questionnaire concepts; the lowest scores were observed for global health (scores of 21.4 and 84.1 for patients and control subjects, respectively; P < .0001) and role/social limitations attributable to physical health problems (scores of 24.9 and 100, respectively; P < .0001). Quality of life for the children with CFS/ME compared unfavorably with previously published results for pediatric patients with type 1 diabetes mellitus or asthma. CONCLUSION: The quality of life of children with CFS/ME was profoundly reduced, compared with that of their healthy counterparts.
机译：目的：本研究的目的是比较一组慢性疲劳综合征（CFS）/肌无力性脑脊髓炎（ME）的小儿患者以及年龄和性别相匹配的健康对照儿童的自我报告和父母报告的生活质量，确定功能和身体损伤的程度。方法：《儿童健康调查表》由在英国各地招募的25名CFS / ME儿童以及23名年龄，性别和Tanner量表匹配的对照儿童完成。此外，还向患者询问有关其疾病背景（即诱发因素），疾病状况和上学情况的问题。结果：患者的中位病程为3年。 68％的儿童说他们的病发展很快，而这种病的传染病发病率为88％。只有1个孩子（占4％）全日制上学，而12个孩子（占48％）非全日制上学，而8个孩子（占32％）仅接受家庭补习。在14个“儿童健康问卷”中，有10个儿童的CFS / ME儿童得分明显较低;整体健康得分最低（患者和对照组受试者分别为21.4和84.1; P <.0001）和身体健康问题所致的角色/社会限制（分别为24.9和100; P <.0001） ）。与先前发表的1型糖尿病或哮喘儿童患者的结果相比，CFS / ME儿童的生活质量较差。结论：与健康儿童相比，CFS / ME儿童的生活质量大大降低。

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