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首页> 外文期刊>Clinical nutrition >The path from oral nutrition to home parenteral nutrition: a qualitative interview study of the experiences of advanced cancer patients and their families.
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The path from oral nutrition to home parenteral nutrition: a qualitative interview study of the experiences of advanced cancer patients and their families.

机译：从口腔营养到家庭肠外营养的途径：对晚期癌症患者及其家人的经历的定性访谈研究。

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Background & aim: Little is known about the perspectives that patients with advanced cancer and their family members have concerning nutritional problems and nutritional support. The aim of this study was to investigate their experiences of the nutritional situation prior to introduction of home parenteral nutrition (HPN) in order to understand factors contributing to the decision to accept HPN. Methods: Semi-structured interviews were conducted with 13 patients with advanced cancer who had received HPN and 11 family members. The constant comparative method was used for data analysis. Results: Patients and family members described the nutritional situation prior to HPN as a source of worry and often desperation. Patients reported wanting and trying to eat, but being unable to do so. Family members experienced powerlessness and frustration, as they could not enable the patient to eat. A lack of attention to nutritional problems by the hospital staff was described. The offer of HPN came when patients andfamily no longer felt able to solve the nutritional problems within the family. Conclusion: The desperate and chaotic nutritional situation in the family led to willingness to accept HPN. Because of the severity of the problems, HPN was viewed as a positive alternative.
机译：背景与目的：晚期癌症患者及其家人对营养问题和营养支持的观点知之甚少。这项研究的目的是在引入家庭肠胃外营养（HPN）之前调查他们的营养状况，以了解促成接受HPN决定的因素。方法：对接受HPN治疗的13例晚期癌症患者和11位家庭成员进行半结构式访谈。常数比较法用于数据分析。结果：患者和家属将HPN之前的营养状况描述为担忧和绝望的根源。患者报告想进食和尝试进食，但未能做到。家庭成员由于无法让病人进食而感到无能为力和沮丧。描述了医院工作人员对营养问题缺乏关注。当患者和家人不再能够解决家庭中的营养问题时，才提出HPN。结论：家庭中绝望和混乱的营养状况导致他们愿意接受HPN。由于问题的严重性，HPN被视为是一种积极的选择。

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