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首页> 外文期刊>Qualitative health research >Aging With Intellectual Disabilities in Families: Navigating Ever-Changing Seas-A Theoretical Model
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Aging With Intellectual Disabilities in Families: Navigating Ever-Changing Seas-A Theoretical Model

机译：在家庭中具有智力障碍的老龄化：导航不断变化的海洋 - 一种理论模型

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摘要

Life expectancy is increasing for people with intellectual disability, many of whom live with family. While there has been research about aging and future planning, there is limited evidence about the characteristics of the caregiving relationship. The aim of this study was to examine perspectives of caregiving for older people with intellectual disability and their family. A constructivist grounded theory approach was used, and 19 people with intellectual disability and 28 family members were interviewed. Caregiving was informed by transitions across the life course. Three interrelated concepts, Riding the Waves, Shifting Sands-Changing Tides, and Uncovering Horizons comprise the core components of the theoretical model-Navigating Ever-Changing Seas. This model informs complex, trans-generational relationships that impact decision-making for people with a long-term condition. Applications within health care indicate a need for systems to include individuals and their networks of care in policy, practice, research, and service delivery across the lifespan.
机译：智力残疾人民的预期寿命正在增加，其中许多人与家人住在一起。虽然有关于老龄化和未来规划的研究，但有限的证据证明了护理关系的特征。本研究的目的是审视识别老年人智力和家庭的老年人的观点。使用了建构主义接地理论方法，并采访了19名智力残疾和28名家庭成员。通过整流课程的过渡通知护理。三个相互关联的概念，骑波，换砂潮汐潮汐和揭示视野包括理论模型导航不断变化的海洋的核心组成部分。该模型通知复杂，跨代关系，为具有长期条件的人们影响决策。医疗保健中的应用表明，需要系统在寿命周上将个人及其护理网络中的服务，实践，研究和服务交付。

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